Kyle’s Terminally Ill Life Journey

Kyle’s Terminally Ill Life Journey Kyle’s Terminally Ill Life Journey

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Kyle is only 22 years old and was diagnosed with TERMINAL SLE Lupus approximately 2 years ago. Kyles dad died because of the same illness.

Two years ago, my son Kyle, 22, was diagnosed with SLE Lupus. Kyle’s dad died of the same disease. SLE Lupus is a multisystem autoimmune disorder that can affect nearly every major organ system, causing inflammation, tissue injury, organ damage and organ dysfunction. Basically it attacks everything in your body needed to survive.

At the time of Kyle’s diagnosis he was strong, hardworking, self-supportive and happy. In the last two years he has become frail, unable to work and cannot care for his own needs or support himself financially.   Kyle’s days are full of so much pain he cannot walk or use his hands and arms.   He spends most of his time in bed because sunlight causes his skin to turn blood red, swell and blister. SLE has also negatively affected Kyle’s eyes and teeth. In the last three months he has had 3 amputation surgeries because of constrictions of arteries due to blood loss.

Kyle has frequent doctor’s appointments in Milwaukee, Appleton, Neenah and Menasha. In the past four months he has been hospitalized several times in Milwaukee.

Kyle lives with me and I alone try to cover all of his medical expenses as well as the care and support of him. Aside from caring for Kyle, I work a full time job, do side work when possible but it still does not cover the expenses. Life is a struggle for both of us just getting through each day. One example of his limitations is that recently his brother was married and asked Kyle to be his best man. Kyle was not able to attend the wedding due to his social limitations associated with SLE. Normal everyday joys that we take for granted have been taken away from Kyle.

Disability benefits have been denied twice for Kyle and there is a 22 month wait to appeal the denial. Also, he cannot apply for life insurance because he has preexisting terminal SLE Lupus. If he had regular Lupus he would be approved for insurance.

I am asking you for your help to make Kyle’s life more comfortable and enjoyable in his fight of SLE Lupus. Any amount that you can spare would be so greatly appreciated. Thank you for taking the time to read Kyle’s story and please keep him in your thoughts and prayers.


1% of $10,000 GOAL

Fundraiser Ended On: December 22, 2017 Midnight (CST)

Fundraising Team

This fundraiser is for:
Kyle Garncarz

Lisa Garncarz
Team Captain


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Supporter Activity

September 27, 2017 - Linda & Steve Bowan

September 6, 2017 - Annoymous
Blessings to you and your mom.

August 31, 2017 - dianne thurber peterson
I love you thinkink about you prayers & thoughts are with you..keep fighting my dear nephew...

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